Identifying dodgy schools

This is a longer form version of a conversation I was involved in on BlueSky, shortly after BBC publicity about children being abused at a special school.

If you are looking for a school for your child, these are some of the things to be considering. Very few of them are in and of themselves deal breakers, you need to be looking for patterns rather than individual red flags, which often have innocent explanations.

– Don’t over rely on Ofsted reports. They are snapshots. We’ve all been made aware of schools sending particular children on school trips during an inspection or temporarily excluding them in an effort to restrict what the inspection team see. The Ofsted report may be correct on the basis of what the team saw at the time and the school still have problems. Also note that sometimes Ofsted go the other way and raise concerns about perfectly proper practices in special schools (like locking doors so children can’t escape or having restraint as an ongoing part of a specific child’s behaviour management plan).

– Do look at other inspection reports where they’re available. Residential schools usually have a separate inspection of their accommodation. Where the accommodation is a children’s home (usually because it offers 52 week accommodation) the inspection report can be more difficult to find because addresses aren’t usually published for children’s homes on their Ofsted reports. Look for CReSTeD reports and any separate inspection report if you’re looking at an independent school.

– Does the school know who it caters for? If the school doesn’t have a clear understanding of which children it should be taking, it will end up with a mix that probably won’t work well. A mixed intake with separate classes / streams may work – one Autism stream, one a primary SEMH stream. Be wary if the school is vague or desperate to take your child (independent schools, including specialist SEN schools will want to keep their numbers up to make their budgets balance and some may be tempted to take children who don’t fit what the school does best).

– What’s the staff turnover like? High levels of staff turnover are invariably a sign of something being wrong with a school. This is unlikely to be mistreatment or abuse of children, but often a problem with the senior leadership team or owners of a school meaning that the teaching and organisation will be less good. Schools that are losing lots of experienced staff lose their institutional memory and skills in working with their pupil cohort.

-If it’s a residential school, find out what the arrangements are for visiting. Can parents come and take their child out for dinner or for a walk around the park? Even if these aren’t feasible activities for you or things your child would enjoy, you want to understand the school’s attitude to families visiting. If you have a child with PMLD or significant behavioural issues, SLD and Autism it would be reasonable to expect the school to facilitate you visiting on site, with respect for the privacy of other children. It’s reasonable to expect a school to generally discourage visiting during teaching hours and to want to maintain the children’s usual routines, particularly for cohorts of Autistic children, so a school saying ‘if you go out for dinner, please be back by 8.30 / 9pm, so we can start the bedtime routine’ isn’t being unreasonable.

-Where you are in a Tribunal case, the preparation of a transition plan is likely to be important as part of the case, particularly where your child has been out of school for a period of time. Once you have confirmation the placement will be happening, it’s worth arranging to talk to the school to go over the details of the plan (of the sort that are too mundane / trivial to have been decided earlier). You ideally want a shared understanding of what you’re expecting to happen as your child goes through the transition plan and starts at the school. In some instances it makes most sense for the child to start going to school, full time immediately, but knowing that this is a big change that will take some adjustment. In other cases a gradual transition plan will work better. Sometimes you can predict a honeymoon of compliance / ‘good’ behaviour that will end in a month or two once the child feels comfortable enough. You want to have an understanding before you start of the range of expected reactions.

-If you are tired / busy / worn out – either after a Tribunal case or because a placement has been arranged quickly in an emergency, arrange for a meeting with the school after you child has been there for a couple of weeks – by this point you ought to have caught up a bit on sleep so that you’re able to engage with the school in planning and in asking them more questions.

-Keep a diary as your child starts at the school, noting their behaviour when they come home and what they say. Lots of things make children more vulnerable to abuse and some of those reasons will be the very reasons they’re in particular schools in the first place. If your child is currently a poor communicator, think about how you might tell if someone is treating them badly. For some young children or older children with physical care needs it may be appropriate for you to see them undressed, giving you an opportunity to spot bruises or other marks the school haven’t told you about.

-If it’s a residential placement, work out your pattern of contact with your child. This may be different to your contact with school staff. It may suit your child to speak to you Tues / Thurs evenings or similar rather than every night. But you may initially need daily or more frequent contact with staff until you’re confident they know your child well enough.

-A good school should be teaching children about their rights in ways matched to the children’s level of understanding. ‘No hitting’ is something many children can understand as is ‘tell somebody if someone hurts you’. Find out about the school’s plan for teaching this bit of PSHE.

-Don’t conceal a camera or microphone in your child’s bag. If you’re worried enough about what’s happening at school to be thinking about this, the time for evidence gathering has passed. Arrange to go and observe your child’s class from a place where your child can’t see you. This may give you some insight as to the interaction between the teaching staff and the children – it may be clear there is a problem with the teacher or that there’s miscommunication and your child hasn’t understood something. If you’re still worried arrange a meeting with the school. If it’s more serious than that arrange for an Emergency Annual Review of the EHCP.

-Where you have serious concerns that your child is being mistreated at a school, you can expect your LA to be more of an ally than an opponent. No LA wants to spend money on schools that are ineffective or be party to a situation where children are being abused by teaching or care staff. You can report the mistreatment as a safeguarding concern to children’s social care, as well as getting the education department to sort out an Emergency Annual Review. You may still end up with an argument with the LA over the next placement, but it is likely to be an easier argument – your child had the needs they had requiring the initial placement and now they may have additional needs arising from their mistreatment, so they need the same sort of placement but in a functional school.

Social Media

KJM Legal has had accounts on Facebook, Instagram, LinkedIn and Twitter since 2018. We’ve never been terribly active on any of them. The broad landscape of social media is continuing to change (I’m old enough to remember when MySpace was social media and to have not been able to open a Facebook account because I wasn’t a university student).

The ways social media is currently changing, I’m not convinced it’s useful for KJM Legal to make use of Facebook, Instagram or Twitter other than to point to content here. On the one hand, these are currently mainstream, readily useable sites with apps that work on Apple and Android phones. I know there are specific groups on Facebook that try to help families of disabled children as well as groups for disabled people, which are currently useable. On the other hand, the way these three sites are now being run (or are about to be run) poses risks to LGBTQ+ people and disabled people. Once somewhere becomes less safe for one marginalised group, the likelihood is it will become less safe for others. And even if it remains ‘safe’ enough, it’s unclear how useful it will remain, as more people move elsewhere.

Putting time into creating content on a site where I don’t have editorial control is always a bit risky; I have seen people lose accounts they rely upon for business purposes because of automated decision making deciding their content was inappropriate for a site. Pointing to content here seems like the best available option, bearing in mind people will still be using Facebook, Instagram and Twitter because they’re ‘easy’ and ‘just work’, which is important when time is limited.

I am not aware of similar concerns about LinkedIn.

KJM Legal now has a BlueSky account. At the moment BlueSky seems possibly more suitable for engaging in conversation.

I’m not adverse to having a KJM Legal account if I can identify a Mastadon instance that’s ok with business accounts. I’m also not adverse to creating a KJM Legal Discord server, if I ever have clients who’d actively like to be put in touch with each other.

Pandemic / home education

As an education lawyer, my position prior to COVID starting would nearly always have been that it’s better for a child to be within the ‘education system’ rather than electively home educated. This is because there’s no way to force an LA to help you with elective home education, so you cannot expect to mix and match LA funded provision with your own. [This is the case notwithstanding that there are times when LAs can be forced to fund education otherwise than at a school]. Generally, LAs should be held to the statutory duty to make suitable educational provision for children with SEN. Opting for elective home education lets the LA get away with doing nothing.

Secondly, for most children with EHCPs, there is a need for specific expert input into their education – they need a SALT, an OT, a Teacher of the Deaf, a QTVI and so on. Elective home education is likely to reduce a household’s income considerably to accommodate an adult being available to supervise / teach the child meaning there will be less money around to buy in these services privately. Obviously NHS based services will be available, whether a child is electively home educated or not, but may be very patchy and with very long waiting lists.

Thirdly, for quite a lot of children with EHCPs, learning how to interact with and communicate with other children is part of the special educational provision they require. In specialist schools this is facilitated by teaching staff working under the guidance of SALTs and there are opportunities integrated into the day for the children to be taught and to practice these skills. With elective home education, there are often family run groups covering particular activities that are hard to do at home that happen at set intervals, which allows some opportunities for social interaction. These are unlikely to happen each day of the week. It is also possible for home educated children to join out of school sports clubs and other organisations like Scouting and Girlguiding. For some children, it may be better for them to work on interaction with other children more slowly and in the ways possible for electively home educated children, but it is something to be considered carefully.

Where elective home education becomes an option that should be seriously considered on at least a temporary basis is when there is a public health situation that is not being properly managed. We are overdue an influenza pandemic, on the basis of the historical timing of recent ones. That doesn’t change just because we’re in a COVID pandemic. At this point, in May 2024, there are concerning reports of avian flu H5N1 being found in the udders of American cows with at least one farmworker infected with it. There are also reports of H5N1 being found in American wastewater. H5N1 has been jumping around between birds and some other mammals (cats, mink) for maybe just over a year. The more it jumps around between birds, mammals and back to birds and so on, the greater the potential it will make the jump to being easily transmissible between people. [At the moment, as far as I can tell, you are at little risk of catching H5N1 unless you are handling dead birds or are around infected herds of dairy cows and exposed to aersolised milk during the milking process].

If H5N1 makes the jump to people, it won’t be immediately obvious because it takes time for people to become ill and more time for them to become ill enough to seek medical care and further time again for those who are going to be seriously affected by it to be hospitalised and for some of them to die. It will take time to work out that H5N1 is what people have (rather than COVID/MERS/some other condition). It is likely that H5N1 will have a substantially higher case fatality rate than COVID – I see estimates of up to about 30%.

Schools will close if there’s an H5N1 pandemic. There won’t be enough well staff to keep them open safely, even if there is political desire to avoid closures. This is a time when you want to be ahead of the curve, to keep your whole household at home as much as possible.

If things proceed as COVID did, it is likely to be safe enough to keep your child at home on the basis of the virus and allow the school to record it as ‘unauthorised absence’, with your child remaining on the school roll for so long as there is no pressure on them to return to school whilst there’s a lot of virus about. If the Government is very slow to respond, you may find yourself with a school trying to manage your child’s absence as if it’s truancy. At which point removing them from the school roll may be the best course of action, unless they have an EHCP (you wouldn’t want to have to fight to ‘recreate’ your EHCP the otherside of the worst bit of pandemic, after you’ve already gone to all the effort of getting it right)

If you have a child with an EHCP attending a special school, removing them from the roll is not as simple as it is for all other children, but you are unlikely to experience much opposition, in these circumstances, to keeping your child at home without removing them from the roll, as many of the children attending special schools will be particularly vulnerable to flu viruses and the school will be tactitly content to have fewer children around to reduce the numbers of people who can pass germs around.

If you already have social services involvement, it will be best to try to get some advice before removing children from a school roll, as unfortunately removing children from school rolls and moving house is a known tactic of abusive parents, because it ‘hides’ children from appropriate interaction with public services. You will want to be clear why it’s unsafe for them to be at school, to indicate whether you are planning to move house (and at this point you might be, if your ‘lockdown’ plan is to join relatives in a big house more rurally etc) and probably to invite the social worker to come and meet you and the children outdoors.

Mainstream / less usual decisions

This writing is prompted in part by an argument I had with someone on Facebook – who knew it was useful for something.

When you are operating in a Court/Tribunal context, your decision making (including your evidence gathering) needs to reflect what the Tribunal is likely to find persuasive. You want, so far as you can, to answer the questions they are likely to have before they’ve asked them. This means a number of things.

  1. Tribunals are not usually sympathetic to arguments for provision that lacks an evidence base, is very new or is otherwise controversial. Think very carefully before including requests for things that might be thought of as “weird and wacky” in an EHCP, because you do run the risk of making yourself look less rational and everything you say being subjected to a higher level of scrutiny. This isn’t ‘fair’ – especially when you are an expert in the topic and you are expecting mainstream science / education professionals to catch up with it in a couple of years time. Some of the time it can be easy to leave things like this out because they aren’t really educational (even using the very wide defintion of special educational provision that the Children and Families Act uses) – hyperbaric oxygen / raw food diets etc can be kept as something you do independently and left out of the EHCP. If you really do need to include something a bit “out of the ordinary”, ask your own independent experts to comment on it and why it works / is likely to work for your child, when more mainstream options are unlikely to work. Note, that you’re always asking independent experts for their professional views – they may disagree with you. In Tribunal cases you generally have a choice about whether or not to serve an expert’s report [this isn’t the case in other jurisdictions] and you will need to consider carefully whether your child is better served by you compromising on the unusual thing or by not using the expert’s evidence. Pick your experts carefully and listen to their advice.
  2. Children are people separate from their parents. In the context of Tribunals making decisions about children with special educational needs, Tribunals make decisions based on the evidence available to them about what is right for the child. Arguments along the lines of “this is my child, we’re doing x because I say so” aren’t going to be helpful to you in arguing about educational provision with a Tribunal, especially when you’re advocating for something that looks unusual. It isn’t like making decisions for yourself, where you have considerable scope for doing what suits you because you consider it’s best for you regardless of what anyone else says.
  3. Applied Behavioural Analysis is in a special category. [It’s a specific type of intense, structured input, usually for very young autistic children] It’s always been somewhat controversial, though it’s been possible to get Tribunals to order it on the basis of evidence that it’s working for a specific child and there’s a plan for it to come to an end in due course with the child integrated into a school. What’s relatively new is that there are now autistic adults online explaining that the practice is abusive and they have suffered from it. Tribunal panels can read the internet as well as the rest of us: they will be aware of this additional bit of controversy. If you have evidence ABA is right for your child, in your specific circumstances and that there isn’t any other suitable provision, you would be well advised to have your independent Educational Psychologist comment on your child’s level of distress when seen working with one of their ABA tutors as well as to have your Consultant/Case Manager comment on how ABA in 2023 differs from that around in 2000, how they support distressed children and enable children to express their feelings.

Tribunal Judges

There’s new guidance about how to address judges in some Courts and Tribunals, that applies to SEN Tribunals, which are part of the “First-tier Tribunal”.

We now all have to get used to calling judges “Judge” rather than “Sir” or “Madam”, whilst specialist members (“wing” members or ‘non-legal members of Tribunals’) continue to be addressed as “Sir” or “Madam”.

“Judge” has been a term used to verbally address English judges by people (mostly barristers) who encounter them outside of Court rooms, for a long time. Inherent in its usage is that the person being addressed is another lawyer, which will be why it’s not being used for specialist members.

A potentially useful phrase is “Judge, I wonder if it would assist you and your colleague(s), if I….”. The important bit is “you and your colleague(s)” as it gives you a less clunky/clumsy way of addressing your whole Tribunal panel at once than any of the alternatives.

Preparation – COVID

When looking at most special educational needs questions, GPs aren’t able to be terribly helpful, because the issues that arise are around the impact on education rather than on the correct medication to trial or similar. [This is a bit of an oversimplification, as there are areas where a GP would be able to advise eg. that a child, due to their medical conditions is likely to tire quickly and need an afternoon nap or rest period before more lessons, but it generally holds true]

Where GPs can help is with related issues:

  1. If you are caring for a disabled relative, it’s worth asking your GP to note that you are doing that. This applies whether you’re caring for a child or an adult (or as some people do, both ie. their child and an elderly parent) They are meant to offer eg. more flexible appointment arrangements to carers as well as annual influenza vaccinations. At the moment, unpaid carers are included as part of JCVI’s priority group 6 for COVID vaccinations, so there is some advantage to you in your GP being aware of your circumstances.
  2. It’s important your GP knows your occupation, as some conditions have occupational risk factors meaning priority for vaccinations. In respect of COVID, if you are employed by a disabled person as their PA, (whether independently, via a personal budget or direct payment) you fall within JCVI’s priority group 2 for COVID vaccinations, along with all other health and social care staff. [Yes, there’s an argument to be had about the ethics of prioritising paid care staff over unpaid carers, but for now this differential treatment is where we are]
  3. There’s certainly talk at the moment of prioritising adults who are key workers for COVID vaccinations at a later stage in the process, so if you are a critical worker it’s worth writing to your GP to make sure they have your occupation recorded correctly and to give them some understanding of how much in person contact you have with people as part of your work.
  4. Children aged 16 or 17 and adults who are Clinically Extremely Vulnerable fall within priority group 4. Children aged 16 or 17 and adults who are Clinically Vulnerable (scroll down to “moderate risk”) fall within priority group 6. It’s arguably worthwhile attempting to arrange any overdue chronic disease appointments to make sure you/your child is definitely on your practice’s radar as falling within priority group 6. Priority group 6 also includes residents in residential care settings, which would include specialist schools as well as care homes, even where residents don’t have conditions that would put them in priority group 6 individually. Usually where people are living in a residential care setting they are registered with a local GP, but sometimes it’s easier for them to be registered with a GP near their usual family home. So if you have a child in such a setting, it’s worth making sure their GP knows this.
  5. At the moment, there’s very limited recommendations for vaccinating children under 16 – see pages 13-14 of Chapter 14a of the Green Book which limits the recommendation to children with severe neurological disease, who frequently get respiratory infections and who spend time in specialist residential settings for children with complex needs. If you have a child who falls within this category, it’d be worth telling their GP that you want them to have the vaccine as soon as it’s available.
  6. GPs are meant to co-ordinate provision and have complete sets of our medical records. When you have obtained independent reports for your child around an aspect of their SEN, it is usually worthwhile sharing these with your child’s GP, even if they won’t affect any medical management immediately. They may be relevant to your child in later life.

Specialisation / knowledge base

I’ve recently had a couple of enquiries from people looking for help with residential conveyancing and will writing. Although conveyancing is part of the Legal Practice Course and will writing/probate is something I did a little of as a Trainee, I have very limited knowledge of either area.

Lawyers specialise early (arguably a bit too early in a way that means a lot of us miss out on seeing some of the connections between fields). But the end result is I know as much about conveyancing as most of the people reading this. I know a little more about will writing because it’s an area of law where there was a capacity test that pre-dates the Mental Capacity Act 2005. It’s also an important area to consider for parents with offspring who lack capacity to manage their own finances as part of long term planning. But I’m not somebody who drafts wills.

If you’re looking for someone to help you with conveyancing, I suggest:

  • get a personal recommendation from people who’ve moved house recently.
  • consider the location of the solicitor’s office and proximity to your [current] home / work locations. [this may be less important during COVID-19, where so much is being done remotely].
  • use the Law Society’s Find a Solicitor search function.

In relation to will writing, I suggest:

  • look for personal recommendations, but be prepared to discard them if the person doesn’t have the right expertise.
  • stick to Solicitors for this, don’t go for non-regulated will writing services.
  • use the Law Society’s Find a solicitor search function – look for firms with expertise in both “private client” work and Court of Protection work if you’re trying to leave money to a disabled relative who lacks capacity to manage their own finances.
  • if your situation is really complex, bear in mind you may need advice from Counsel on some aspect of it.

COIVD-19 – Face Coverings

There are exemptions from the law on wearing a face covering on public transport in England for some disabled people (and other exemptions that might also apply).

In general, my advice on this one is:

  • learn the exemptions in case you need to use them to deal with an overly officious person
  • wear a face covering anyway
  • if you can’t wear a face covering, don’t go to places where you’ll end up being physically close to people you don’t live with.

I’d treat face coverings like medical equipment that kids get to play with to see how it works before it’s used on them. Have them around, wear them at home, experiment with the different things available to find the most comfortable to wear. [The last time I checked things like plastic face shields counted as a face covering and might be better for some people than material over their mouths and noses]

Communication support – disability specific cards and other identifying items

This is as complete a list as I can currently compile (there are some places that have removed details of everything they sell from their websites whilst they’re closed for COVID-19 reasons). Expect this list to expand in due course and for the post to be edited. Please do draw any broken links to my attention.

Although I’d been aware of a number of these before drafting this post, the act of drafting leads me to conclude that disability or illness specific alerting cards or items are generally made for disabilities / illnesses / conditions

  • that can affect how people behave in public
  • that can cause loss of consciousness
  • that can affect how people communicate
  • that affect how people should be cared for by medics in emergency situations
  • that are really rare, so a prompt is needed for unfamiliar medics.

Deliberately omitted from this post, which is already quite long are alerting cards / other documents for particular medications or that operate in particular areas of the country – this is a condition specific list.

Headway provide a card for people with Acquired Brain Injury

Alzheimers/ dementia

A charity is working on ID cards for ataxia

Auditory Processing Disorder (at the end of the document)

There are lots of Autism Alert Cards:

The National Autistic Society’s downloadable one

ARGH card designed by autistic people for autistic people

Autism Anglia (covers Bedfordshire, Cambridgeshire Essex, Hertfordshire, Suffolk and Norfolk)

Autism Berkshire (covers Bracknell, Reading, Royal Borough of Windsor and Maidenhead, Slough, West Berkshire, Wokingham)

Autism Wessex (covers Bournemouth, Dorset and Poole)

Autism West Midlands (covers the British Transport Police nationally as well as Staffordshire, Warwickshire, the West Midlands (eg. Birmingham, Coventry and Wolverhampton), the West Mercia Constabulary (think Herefordshire and Worcestershire, Shropshire, Telford and Wrekin)

Cheshire Autism

Cumbria

Devon and Cornwall

East Sussex

Hampshire

Howgate shopping centre, Falkirk, Scotland

Kent

Leeds City

London (also used by the British Transport Police)

The Marlands shopping centre, Southampton

Oxfordshire

Pentagon shopping centre, Chatham, Kent

Scotland

South Yorkshire

Wales

Wiltshire

Behcet’s disease

Mobility canes for blind people – they also sell red and white canes for deafblind people. (there’s a relatively straight forward process for blind people to register their sight loss in the LA registers, which perhaps diminishes their need for any separate card or other small identifying object).

Cancer on board badges

Deafblind cards

Deaf children / Wiltshire and Dorset Deaf Association – for BSL users / Wiltshire and Dorset Deaf Association – for non-BSL users / Hearing Aid battery books / badges for deaf people and wristbands and related items for deaf people

Developmental Language Disorder

Diabetes Wristbands / Diabetes ID cards for insulin users only / Diabetes necklaces / more diabetes wristbands and other ID / Insulin passports

Given how hard it is to find any dyslexia specific alert cards, I suspect they aren’t considered to be useful by many dyslexics. There was, some ten years ago, a Bromley specific scheme providing a card called Helping Everyone with Literacy Problems to help people ask non-verbally for help with reading and completing forms. It is unclear to me why this scheme no longer exists; public spending cuts or it being a non-disabled person’s solution to something that wasn’t needed.

Epilepsy Action / Epilepsy Society

Heart Conditions/ Heart Failure / Cardiomyopathy

Huntingdon’s disease

Fistula wristbands/ Emergency treatment keyrings for people with fistulas for dialysis/ more emergency keyrings

Advanced liver disease / hepatic encephalopathy passport

Primary sclerosing cholangitis

Mental Health – key ring based set of cards for anxiety

Crisis cards: a generic crisis card. Central and North West London, an easy read version by Central and North West London, Dudley and Walsall, NHS Fife, Wales

Motor Neurone Disease

Multiple Sclerosis

Muscular Dystrophies

Myotonic Dystrophy

Parkinsons

Phaeochromocytoma / Paraganglioma

Prospopagnosia (face blindness)

Stroke cards/ “communication licences” for people who’ve had strokes

Tourettes

Other communication support tools

There are many different documents and other items eg. cards / badges / wrist bands available to help people communicate non-verbally. I’ve covered those specifically intended for use when using public transport in another blog post as there are rather a lot of them. It’s quite difficult to create an overarching structure to describe what’s broadly available, as what exists comes from different sources made for different and often overlapping purposes. To keep this post to a manageable length, I haven’t covered Apple or Android Applications that do the same or a similar job to these physical objects. At an overarching level there seem to be:

  • Items which prove something about the individual to someone else
  • Items which assert an entitlement to a discount / concession
  • Items that assist communication specifically with public services or other officialdom
  • Items that generally assist communication – whether because someone cannot (always) use spoken English, the information is too lengthy/detailed to be spoken and needs to be put in writing, the information is important and has to be communicated repeatedly or because it’s designed for an emergency situation where someone who would otherwise speak is prevented from doing so.

In more detail there are:

  • Typical symbols of disability that are reasonably well known: Blue badges, Disabled Persons Railcard, Bus Pass under the English National Concessionary Travel Scheme (includes Freedom Passes for London), Disabled Coachcard
  • Correspondence from the DWP eg. award letters for DLA/PIP/AA and in some circumstances ESA or about the limited capable for work (and work related activity) elements of Universal Credit. This is a prerequisite to obtaining some of the other items listed here. A4 letters are much less convenient for carrying in a purse or wallet than something credit card sized. They also contain a lot of personal information that is often irrelevant.
  • Correspondence from Children’s Services or Adult Social Care eg. an assessment of your needs, details of the services they’re providing.
  • Correspondence in respect of NHS Continuing Care.
  • EHCPs and Annual Review documentation.
  • very occasionally, documents providing written proof of registration with a Local Authority as disabled, eg. Hampshire’s yellow card
  • also occasionally, letters from a doctor, usually on an NHS letterhead, confirming something about you – that you can’t stand, queue, need a telephone, need a carer (or more than one), need someone to travel with you to hospital appointments, can’t use a telephone directory etc and things like Certificates of Visual Impairment.
  • Medical Exemption Certificates for presciptions
  • cards and other identifying items to help you show you entitlement to a discount or other concession eg. Nimbus Access Card, CEA Card, DID card – usually for these sorts of cards, to obtain the card you need to show the issuing organisation some evidence of your need for it.
  • organisation specific cards showing an entitlement / concession eg. the National Trust’s Essential Companion card, Ride Access Passes / Carer Passes for Merlin theme parks.
  • cards intended to help people deal with the police and other authority figures – some Autism Alert Cards are like this. As these sorts of cards are often created together with police forces, they are usually only issued on receipt of proof of a particular disability or condition. There are other initiatives aimed at helping people with communication problems interact with the police eg. some areas’ implementations of the Safe Places Scheme (but not all of them), Pegasus Card Scheme
  • Specifics to do with toileting – RADAR keys to open accessible toilets that are kept locked using a standard key format. Can’t Wait cards which seem to sit in an odd place – they are intended for use by people who are usually verbal to reinforce or replace a verbal request to use a toilet – with part of the theatre of the request coming from the card appearing to be official (though they’re not).
  • cards and other items to explain in simple terms that you have a particular disability or illness eg. Autism Alert cards, that are often created by the well known charities and are reasonably easy to obtain on request. Here’s another by the Bladder and Bowel Foundation
  • tools that originate from disabled adults making the things that work for them see eg. Stickman Communications, the Curly Hair Project, Codeword Pineapple, Cancer on Board badges, Doodlepeople, Sootmegs
  • tools that originate from work developed by Speech and Language Therapists, see eg. products produced by the Play Doctors, like communication fans, communication passports
  • medical alert bracelets, necklaces and other items intended for emergency communication eg. Medic Alert, ICE Communication Cards, some carers emergency card schemes, message in a bottle schemes
  • situation specific tools eg. hospital passports, Disability/About Me Passport for assisting in person communication with Job Centre Plus staff, Reasonable Adjustment Passports and Wellness Action Plans for use in the workplace – many of these tools are designed for communicating information that has to be communicated repeatedly in an efficient way.